Cole DeLargie-Campbell shared that receiving a terminal illness diagnosis brought a mix of sadness and a unique perspective on life. They reflected on the rare opportunity to plan their end, following the news of having a terminal brain disease roughly four years after the discovery of a brain tumor at the age of 34.
The emotional rollercoaster of surgeries, complications, and hospital visits culminated in the realization that the tumor, humorously named “Brian,” was now a permanent resident in their head.
As they embrace the time ahead, DeLargie-Campbell focuses on creating lasting memories by writing journals, compiling bucket lists, and cherishing moments with their spouse, Kaila DeLargie-Campbell.
Due to the impact of the tumor on their mobility and work, a fundraising campaign was initiated by friends on GoFundMe to support DeLargie-Campbell and their spouse during this challenging period.
Reevaluating Priorities
DeLargie-Campbell’s perspective shifted towards appreciating the essence of life, emphasizing the significance of simple pleasures like discovering new music and TV shows. They expressed a shift in priorities, valuing familiar comforts and experiences over pushing boundaries.
Their bucket list includes diverse activities such as exploring Canada by rail, indulging in Grand Theft Auto VI upon its release, and relishing moments with loved ones.
Embracing Life Amidst Uncertainty
Despite the grim prognosis, DeLargie-Campbell remains determined to live fully and gracefully, acknowledging the stages of denial and grief while striving to make the most of their time. They aim to raise awareness about meningiomas and advocate for timely medical attention when experiencing concerning symptoms.
DeLargie-Campbell’s story serves as a poignant reminder to cherish each day and pursue meaningful experiences, urging others to live with gratitude and intention.